[featured-image link=”null” link_single=”inherit” single_newwindow=”false” alt=”my proof of disability”] Yesterday I went to the Secretary of State’s office and picked up a handicapped parking placard. It’s incredible how difficult the process can be. Not in terms of complexity, just that both times I have had to get one of these I’ve had to endure lectures fromContinue reading “Feeling Judged”
Tag Archives: MS
On Suffering, Loss, and Being Okay
[featured-image link=”null” link_single=”inherit” single_newwindow=”false” alt=”suffering”]123rf.com[/featured-image] I’m developing a capacity for suffering, for losing people I love, and yet I know deep down that I will be okay. In fact, I know it because of the suffering and loss. I know you’ll be okay too. I want to share with you how I’ve come to know this. AContinue reading “On Suffering, Loss, and Being Okay”
Walking improving substantially
I would say I’m 60%, perhaps 70%, better now than I was the day I went into the hospital (and the number moves to about 85% if you are just rating my walking). Walking has improved pretty dramatically over the past 48 hours. I attribute this to some important work done in PT, combined withContinue reading “Walking improving substantially”
Learning to Walk
Three brief videos are now on my YouTube channel that show how severely my walking had been affected immediately after I was hospitalized, and PT’s starting to teach me to walk again. Pretty amazing what they can teach, given that I couldn’t, and still can’t, feel my feet.
Preaching Sunday
A word to readers of my blog who are not connected to the church I lead, Wildwind Church, and who do not know me personally. I have felt it necessary to use this blog a great deal lately to keep loved ones and interested readers all over the country informed about the status of myContinue reading “Preaching Sunday”
Waiting
What am I waiting around this house for? Healing, so I’m waiting to feel better? Time to pass, so that I can know not to expect any further healing to happen in my body? If I’m just waiting for time to pass, why not get something done, get up off this couch, and make thingsContinue reading “Waiting”
Home
Came home last evening. Extremely intense experience. Finally got to my place on the couch and was just overwhelmed with emotion. It took me a few minutes to finally say to Christy, “Here I am, back here, after all these days and all this work, and I feel exactly the same as when I left.”Continue reading “Home”
You’re Still Here
Words to a song I wrote when home sick with MS for a few weeks in the late 90’s. A much more “Christian” song than the next one I wrote about the disease a few years later. Still, some good thoughts perhaps. YOU’RE STILL HERE Seems those worship songs of yesterday Rarely moved my heartContinue reading “You’re Still Here”
Body image, vulnerability, and shame
Most fun I’ve ever had showering in front of a woman half my age: none. Awkward experience, but Mary Beth was a pro. I got my A in self-care. I was like “Seriously? You’re going to stand here while I shower? So you want the full monty?” Funny how the body connects to the soul.Continue reading “Body image, vulnerability, and shame”
Going home
Back to going home tomorrow. They were going to discharge me Wednesday morning at 10, without any PT or OT that day. What’s the point of just staying one more night? Christy is picking me up after work tomorrow evening, so tomorrow is my last day of PT/OT and I’m out of here. My feet areContinue reading “Going home”
Temp Arbor 